Friday, April 03, 2009

Fund the Mission

Below is our fundraising video for the March of Dimes. We are the Ambassador family for 2009 for Tulsa, and we are so excited about working with everyone to raise money for this cause which is so near to our hearts. Let me know what you think!

Thursday, July 05, 2007

Archives Only

I have decided to retire from posting on this blog. My preemie, Jackson, really isn't facing a lot of preemie-related issues anymore, so I will only be posting to my blog about all of my boys. This is a happy time for me. I'd rather have nothing to write about than to have to deal with stressful preemie-related issues. To all of the people who have read my blog, I hope you have taken something away from it, whether it be knowledge or hope or whatever. Click on the links above to read our journey through the NICU.

Check out my other blog!

Sunday, June 10, 2007

No More Adjusted Age...

Its been awhile since I posted, just because things have been busy with work and school, and of course, the kids. Jack had his second birthday. With it, we can no longer refer to him by his adjusted age. By age 2, he should be completely caught up, and for the most part he is. In physical therapy, he is performing right on target for his actual age. In occupational therapy, he isn't far behind. However, we are still fighting delays in speech therapy. His physician isn't worried about it, and neither am I. He's still gaining weight, slowly but steadily, so we're not too worried about that either. Hopefully now that's two his breathing problems will subside and he won't use so many calories trying to breath. All is well for now....

Tuesday, April 10, 2007

Most Recent Preemie Clinic

Today was our first appointment with the preemie clinic since January. Everyone said Jack looked great. Dr Gus said he wishes he knew what went right with Jackson so he could use the information to make every preemies outcome as good. He does want Jack to start taking Pediasure to gain some weight. Hopefully that will work.
Also, Jack met with OT today and his therapist says he's making such excellent progress that we probably won't have to keep coming much longer. YAY!

Friday, March 09, 2007

I Can See Clearly Now...

So many things have happened since my last post...the last week of January, Jack was admitted to the hospital. Over the previous weekend, Luke and Beau were both sick with ear infections, which was weird because they are never sick. By Monday they were feeling better, but on Tuesday, when I picked Jack up from preschool, he looked very tired and had a runny nose with just a slight wheeze. By 10pm that night, he was having such a difficult time breathing that my husband took him to the emergency department because I, too, was very sick. Luckily, having worked there when I delivered Jack prematurely, the charge nurse immediately and appropriately (HA) took charge and grabbed Jack before he could even be triaged. She took him to a room, grabbed a doctor along the way and quickly gave a full medical history. The doctor diagnosed him with respiratory failure and sent him to the PICU, where our pediatrician saw him not too long after. He spent two days in PICU and then three more days on the pediatric floor before he could finally keep his o2 saturation above 95%. After coming home he was on oral steroids and Xopenex breathing treatments, but now we just do the breathing treatments when he is audibly wheezing. So far, so good.
Now that the bad stuff is out of the way, here's the GOOD STUFF:
Midyear last year, Jack started Physical, Occupational, and Speech Therapy at the referral of the preemie clinic as well as our pediatrician. He was attending OT and PT twice a month each, and Speech every week. Because of the excellent progress he has made, we now attend each therapy just once a month. That's right, folks!!! That means he is walking and vocalizing. He can now walk hands-free for short distances by himself AND he can say quite a few words, including: momma, dadda, bye, bawbaw, bubba (aka Luke), Beau Beau (aka Beau), and MINE, as well as fake a sneeze. HAHA He has also tested negative for autism, which we are ecstatic about. We attribute all of his progress not only to his therapy and their recommendations, but also to his moving up to a new class at school with older children that he can interact with.
That brings us up to date with today, which was very momentous. Today, Jackson got his first pair of glasses.

CUTEST BABY AWARD GOES TO...




Wednesday, January 10, 2007

Recent Developments

The holidays were WAY too busy at our house! And so much has happened! Jack is making excellent strides in all of his therapy.
In Speech Therapy, he's FINALLY started using his voice, especially when he's playing. When he pushes cars across the floor, he'll make an engine noise that is just too adorable. Obviously he is paying attention to his older brothers! He's also using sign language, but just at dinner time. He'll sign "more" and "milk". We're working on signing "all done" and "thank you".
In Physical Therapy, he's trying very hard to walk. In our last session, he was standing without holding onto anything, and the therapist held out some Cherrios. He took two steps, took the food out of her hand, and stood there eating them without holding onto anything. She believes he has the strength to walk, its just getting the confidence to do it.
Yesterday in Occupational Therapy, he just blew the therapist away. Though speech development has been his biggest hurdle, he's had to work very hard on his fine motor skills as well, and yesterday it paid off. He was playing with a bucket with a lid that had shapes cut out on top. He consistently took the lid off of the bucket and expertly placed it back on. We clapped everytime he did it, and when we didn't clap, he clapped for himself! He then showed off by placing the appropriate shape in the appropriate hole. Then the therapist turned the bucket upside down, which irritated Jack a little and he kept trying to turn it over so he could put the blocks in it. But then she placed two blocks on top of the bucket and started to say "I wonder if he will stack them." She didn't get halfway through her sentence when he picked one block up and placed it neatly and purposefully on top of the other. Our therapist, Carrie, was speechless. She finally said "I didn't even have to show him what to do..." And then I stated that I hadn't ever seen him do that at home.
He's been doing so well that we are now going to cut down on some of the therapy. Speech therapy is every other week now, instead of weekly. Occupational therapy is now just once a month. Until he starts walking, we're going to continue to do physical therapy twice a month.
Next week, Jackson will move up from his infant classroom at school to the young toddler room, or "wobbler", as our school classifies it. It will be a sad move, because he has grown so connected to his teachers, and they have just fallen in love with him over the past 14 months. But I know that this will be best for him, and in the visits he has made to his new class, he has acted like he owned the place, so I'm sure that he will be fine.

Monday, December 18, 2006

Santa Baby!